That same tutor gave me the push I needed to find the confidence to get back out into the world and I began volunteering for an advocacy organisation. It was there I started to understand how people with any label or diagnosis have to fight to have a voice and to be seen as more than their impairment.
A part time paid role came up, which I applied for and got and 3 years later I was the Chief Executive. When the Valuing People White Paper came out in 2001, I was lucky enough to get a job as part of the original Valuing People Support Team, working with some amazing people to try and change the lives of people with learning disabilities.
The original ideas and policy for what we now call personalised care and support planning and personal budgets started in our team and I’m very proud to have been part of that thinking.
All this time I was experiencing strange parallel universes myself; when I was ‘well’, I was valued and respected as a part of a national team working with cutting edge policy that was radically changing the world of social care.
When I was ‘ill’, my only option for support was from a system that seemed to fail to understand what was important to me as a human being – my job, my home, my role, purpose and contribution and my relationships with the people who love me.
Along the way I acquired two kids, as you do. Mine came to me not from me and I’m foster mum to The Boy, who came to me at 10 and is now 28, and The Girl, who came to me at 8 and is now 24.
Both happen to be autistic and have learning disabilities. Given that they were potentially both headed to what the system calls ‘specialist autism services' miles away from where they lived, I feel incredibly proud of what they have achieved and of the beautiful human beings that they are.
I’ve been passionate about the principles of inclusion since I was a student, but I’m now lucky enough to be able to share how I’ve made things work for me and for my kids. I sum this up in the idea of how to get people Gloriously Ordinary Lives and that is what drives every aspect of my work.